Kyla is the Founder of the UK based charity Mitrofanoff Support. Kyla was born with complex urological and gynaecological problems which were not diagnosed until the age of eight. Kyla's childhood and adolescence were characterised by constant incontinence and bullying from others. In 1998, at the age of sixteen, Kyla underwent the Mitrofanoff procedure which profoundly improved her life. The Mitrofanoff procedure creates a tube for voiding the bladder made from the appendix or bowel. One end of the tube is embedded into the wall of the bladder creating a continent valve, the other is discretely hidden in the navel or low in the pelvic region below the bikini line. The bladder is voided every 3-4 hours by intermittent self-catheterisation via the Mitrofanoff channel. The surgery is often combined with more complicated procedures, to either enlarge the bladder or to create a urinary reservoir. The bladder neck is often tied off from the urethra ensuring the patient remains dry.
In 2010, Kyla established Mitrofanoff Support to help others in the UK and Europe who have had the life changing surgery. Kyla was a constant source of support via Skype and email for Janelle Solomon and Greg Solomon, CEO and Directors of Mitrofanoff Support Australia, while their young daughter underwent the Mitrofanoff procedure in December 2013 in an Australian hospital.
Kyla provides catheter and product development advice to a range of companies. She has been instrumental in the development of new catheters designed specifically for Mitrofanoff patient comfort. Currently Australians can only purchase urinary catheters locally. Kyla is also the Product Specialist for Hunter Urology and splits her time between Mitrofanoff Support and Hunter Urology.
Kyla visited Australia in October 2013 to assist Janelle Solomon with the launch of Mitrofanoff Support Australia (MSA). MSA, though closely linked to the UK Mitrofanoff Support Group, is a separate entity to the UK organisation. Like the UK group, MSA aims to raise awareness of the Mitrofanoff procedure in Australia and to provide emotional support, information and a social platform for people, their families and carers, who are considering and/or have undergone the procedure.