Raising Awareness in 2015

Mitrofanoff Support Australia (MSA) CEO Janelle Solomon has so far this year attended conferences, patient support groups and hospitals in South Australia, New South Wales, Victoria and New Zealand to raise awareness of the needs of mitrofanoff patients. 

A key objective of MSA is to raise awareness about the organisation, the various complex reconstructive procedures available to chronic patients, and the emotional, clinical and social support network MSA provides for patients in Australia.  

Attending industry conferences is a great opportunity for clinical practitioners to learn first hand about the complex urological procedures from a patient's perspective.   Hollister Mitrofanoff Australia Scholarship Winner 2015 and Gastronaught puppets are always of great interest to delegates, as are the range of projects MSA has underway to improve clinical resources and financial assistance for nurses and patients.  

Mitrofanoff Support Australia gratefully acknowledges generous support from the following organisations which have provided free, or heavily discounted exhibition booths, sponsorship to attend industry conferences, and/or helping to raise awareness by displaying MSA brochures in their own trade exhibition spaces:

2015 Events Attended To Date

Urological Society Australia New Zealand 2015 Annual Scientific Meeting, Adelaide 11th – 14th April 

An international delegation of 1600 urology surgeons, urology nurses and associated specialists attending 4 days of presentations, research papers, and workshops at Adelaide Convention Centre.  

MSA’s exhibition booth in the Trade's Hall was well attending by international and Australian surgeons, nurses and industry.  Janelle spoke with many delegates and trade staff throughout the duration of the event.  

OstomySA Mum's Group, Adelaide  15th April

Janelle visited the group generating support for families in South Australia. 

New Zealand, May 27 & 28th  

Janelle Solomon and Gary Hunter from Hunter Urology visited Starship Children’s Hospital and Auckland City Hospital to meet paediatric urology surgeons, and stomal therapy and urology nurses. 

Victorian Continence Resource State Conference, Hepburn Springs, Victoria 29th May  

MSA was represented on both Sutherland Medical and Hollister exhibition booths.  Janelle was in attendance to speak with numerous Continence nurses and surgeons.  

BEECHAC Snug Camp, Newcastle 29th – 31st May   

Janelle attended the camp to meet with other families taking samples from numerous continence suppliers for attendees to look over.   

Austin Hospital UroGP Symposium, Melbourne Convention Centre 13th June  

A delegation of 350 General Practitioners attended the event.  Many GPs stopped by MSA’s table to learn more about the procedure and what life is like post surgery.  Most had not heard of the procedure and were surprised how many patients had undergone the surgery in Victoria.  

Upcoming Events in 2015:

  • Australian Association Stomal Therapy Nurses National Conference, Melbourne, 5th – 7th October
  • Swedish Australian Health Care Forum, Canberra 14th October
  • Ostomy Australia Conference, Adelaide 15th – 17th October. Janelle is a Guest Speaker
  • Societe Internationale d’Urology Conference, Melbourne, 15th – 18th October
  • Continence Foundation Australia National Conference, Melbourne, 25th -28th November